Did you know that approximate 7% of Portugal’s population will be diagnosed with a ‘rare’ disease? Rare diseases are those that occur in 1 person of every 2.000, or less. While each disease is rare, there are 5.000-7.000 of them, each with its own symptoms, diagnostic requirements, support needs and rehabilitation processes.
Raríssimas (The National Association of Mental and Rare Diseases) was chartered in 2002 by a group of concerned parents and has become an association with high national and international recognition for its work supporting people with rare diseases and their frequently overworked, overextended families.
Raríssimas is committed to 1) increasing public awareness about rare diseases; 2) improving the diagnosis, referral and treatment of those with rare disease and 3) providing care to rare disease patients and their families.
With national headquarters in Moita, near Lisbon, the Algarve is fortunate that Raríssimas opened a facility in Tavira in February 2016. Local businessman and father of a son with a rare disease (Angelman Syndrome), Ricardo Chaves, directs the Tavira operations. This Raríssimas Centre will be a multidisciplinary clinic, created in order to meet the growing demand for personalized therapies and rehabilitative and specialized consultations. Through a multidisciplinary team, they will develop individual treatment programs that focus on the motor development and sensory cognition of their clients and also supporting their families.
Rotary E-club Porches International is pleased to announce its support for Raríssimas Tavira, working with Sr. Chaves to increase awareness of Raríssimas and the new facility.
Watch for details shortly about a fundraising gala dinner and musical evening planned for May, or follow us on Facebook.
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